Imagine .. not being able to speak.

'.. and the present is life, and life is good to live'

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Imagine … not being able to speak.  Imagine … being unable to spontaneously express your opinion, to listen to others expressing theirs or discussing a topic about which you are knowledgeable and they are not.

Imagine … being unable to read a story to your young grandchildren or to answer their questions before they tire of concentrating on what you are trying to communicate to them. And saying Yes when you mean No.  Imagine … wanting to read a newspaper article and being unable to understand more than a paragraph.  

Now Imagine ….. watching that person, your partner, a loved one, struggling with this situation, frustrated, often tearful.  Imagine … remembering the past, before Aphasia, the conversations, the shared interests, the sense of humour now barely there, the able body.  Imagine … having constant feelings of guilt, apathy, because you think you should be doing more to make it easier, but you don’t know what to do. This is living with aphasia.

Imagine … now spending much more time together than we used to – we are alive, we’ve turned a corner into the ‘road less travelled’ in our lives. 

I remember a quote from the poem “The Past Was Goodly Once” by William Henley:
‘…..and the present is life, and life is good to live’.

Lesley

John

A Carers perspective

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At the AphasiaNow conference I heard someone say: "you don’t know what it’s like to live with the after effects of a stroke." Well, believe me, no one knows better than a Carer!

Lyn

Strength in Numbers

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"Lyn suffered a severe bleed in the brain in April 2012, which resulted in her unable to tell the time or hold the concept of events placed in a sequence of time or the ability to manipulate numbers simply (add and subtract etc.), or speak fluently..

My Mum Mary

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My Mum had her first stroke in September 2011. My cousin recognised the symptoms, called the ambulance and Mum was in hospital and being treated within 1 hour.

The stroke damaged her front parietal lobe, thus affecting her speech and reasoning..

more ..

Kim volunteers for AphasiaNow. You can read more about her here

Catherine

CatherineStalls

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My name is Catherine Webb. I was involved in a car accident age 24. I suffered a carotid artery dissection which resulted in a stroke and aphasia.

I was paralysed down the right side and could not speak.

I was in hospital in Spain for three weeks and then for another three months in England. I have been undergoing physiotherapy and speech therapy for nearly two years now and my progress has been very good. I can now walk without a noticeable limp and my arm is now very functional, but I still have difficulty doing anything intricate with my right hand. My speech has also hugely improved, but I do have difficulty reading and writing. I can now communicate without any difficulty, but I am not fluent. If I had to go into any depth I would find it difficult.

Prior to my accident I worked in travel and tourism, but I now feel I want a new direction and a new start.

Cath and Daphne

The AphasiaNow Conference

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"I arrived not knowing quite what to expect, but I walked into the main hall and I was amazed at the professional way everything had been arranged, from the helpful information pack to the varied programme. Catherine and I had a really enjoyable and inspiring day.

I enjoyed the inspirational talks..

Trust me, I am a Doctor

Jenny's story

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